Social & behavioral research on Alzheimer's Disease and dementia in diverse populations: A bibliography

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Recruitment and Retention (17)

• Ballard, E. L., & Others, A. (1993). Recruitment of black elderly for clinical research studies of dementia: The CERAD experience. Gerontologist, 33(4), 561-565.
• Bonner, G. J., Darkwa, O. K., & Gorelick, P. B. (2000). Autopsy recruitment program for African Americans. Alzheimer Disease & Associated Disorders, 14(4), 202-208.
• Connell, C. M., Shaw, B. A., Holmes, S. B., & Foster, N. L. (2001). Caregivers' attitudes toward their family members' participation in Alzheimer disease research: Implications for recruitment and retention. Alzheimer Disease & Associated Disorders, 15(3), 137-145.
• Gallagher-Thompson, Dolores; Rabinowitz, Yaron; Tang, Paulette C. Y.; Tse, Collins; Kwo, Elizabeth; Hsu, Shannon; Wang, Peng-Chih; Leung, Laurie; Tong, Hui-Qi; Thompson, Larry W. (2006). Recruiting Chinese Americans for dementia caregiver intervention research: suggestions for success. American Journal of Geriatric Psychiatry, 14:8, 676-83.
• Gallagher-Thompson, D., Solano, N., Coon, D. W., & Arean, P. A. (2003). Recruitment and retention of Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. Gerontologist, 43(1), 45-51.
• Guo, Z., Levy, B. R., Hinton, W. L., Weitzman, P. F., & Levkoff, S. E. (2000). The power of labels: Recruiting dementia-affected Chinese American elders and their caregivers. Journal of Mental Health and Aging, 6(1), 103-112.
• Hinton, Ladson; Carter, Kimberly; Reed, Bruce R.; Beckett, Laurel; Lara, Esther; DeCarli, Charles; Mungas, Dan. (2010). Recruitment of a community-based cohort for research on diversity and risk of dementia. Alzheimer Disease and Associated Disorders 24(3), 234-241.
• Hinton, W. L., Guo, Z., Hillygus, J., & Levkoff, S. (2000). Working with culture: A qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research. Journal of Cross Cultural Gerontology, 15(2), 119-137.
• Jefferson, Angela L.; Lambe, Susan; Chaisson, Christine; Palmisano, Joseph; Horvath, Kathy J.; Karlawish, Jason. (2011). Clinical research participation among aging adults enrolled in an Alzheimer’s Disease Center research registry. Journal of Alzheimer's Disease, 23(3), 443-452.
• Jefferson, Angela L.; Lambe, Susan; Cook, Elana; Pimontel, Monique; Palmisano, Joseph; Chaisson, Christine. (2011). Factors associated with African American and White elders' participation in a brain donation program. Alzheimer Disease and Associated Disorders, 25(1), 11-16.
• Lampley-Dallas, V. T. (2002). Research issues for minority dementia patients and their caregivers: What are the gaps in our knowledge base? Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S46-S49.
• Nichols, Linda, Martindale-Adams, Jennifer, Burns, Robert, Coon, David, Ory, Marcia, Mahoney, Diane, Tarlow, Barbara, Burgio, Louis, Gallagher-Thompson, Dolores & Guy, Delois. Social marketing as a framework for recruitment: Illustrations from the REACH study. Journal of Aging and Health, 16(5), 157S-176S.
• Olin, J. T., Dagerman, K. S., Fox, L. S., Bowers, B., & Schneider, L. S. (2002). Increasing ethnic minority participation in Alzheimer disease research. Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S82-85.
• Olin, J. T., Pawluczyk, S., Kaufman, G. T., Taussig, I. M., Henderson, V. W., & Schneider, L. S. (1997). A comparative analysis of Spanish and English speaking Alzheimer's disease patients: Eligibility and interest in clinical drug trials. Journal of Clinical Geropsychology, 3(3), 183-190.
• Souder, Elaine, Terry, Tanya Laws. (2009). Use of Lay Educators to Overcome Barriers to Research with Black Older Adults. Research in Gerontological Nursing, 2(4), 235-242.
• Welsh, K. A., Ballard, E., Nash, F., Raiford, K., & Harrell, L. (1994). Issues affecting minority participation in research studies of Alzheimer's disease. Alzheimer Disease & Associated Disorders, 8(Suppl. 4), 38-48.
• Williams, C., Tappen, R., Buscemi, C., Rivera, R., & Lezcano, J. (2001). Obtaining family consent for participation in Alzheimer's research in a Cuban-American population: Strategies to overcome the barriers. American Journal of Alzheimer's Disease and Other Dementias, 16(3), 183-187.

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Awareness and Understanding Interventions and Outreach Language as a Factor in Minority Research