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Social & behavioral research on Alzheimer's Disease and dementia in diverse populations: A bibliography

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Caregivers and Coping with Caregiving (122)

Caregivers | Coping with Caregiving

Caregivers

  • Austrom, Mary Guerriero; Hartwell, Cora; Moore, Patricia; Perkins, Anthony J.; Damush, Teresa; Unverzagt, Frederick W.; Boustani, Malaz; Hendrie, Hugh C.; Callahan, Christopher M. (2006). An integrated model of comprehensive care for people with Alzheimer's disease and their caregivers in a primary care setting. Dementia: The International Journal of Social Research and Practice, 5(3), 339-52.
  • Azar, Armin; Dadvar, Shukofeh. (2008). Psychoeducational program for Iranian family caregivers living in northern California. Clincal Gerontologist, 31(3), 95-100.
  • Buhr, Gwendolen T.; Kuchibhatla, Maragatha; Clipp, Elizabeth C. (2006). Caregivers' reasons for nursing home placement: clues for improving discussions with families prior to the transition. Gerontologist 46(1): 52-61.
  • Bird, Michael; Llewellyn-Jones, Robert H.; Korten, Ailsa. (2009). An evaluation of the effectiveness of a case-specific approach to challenging behaviour associated with dementia. Aging & Mental Health 13(1): 73-83.
  • Burgio, L., Stevens, D., Guy, D., Roth, D. L., & Haley, W. E. (2003). Impact of two psychological interventions on white and African American family caregivers of individuals with dementia. Gerontologist, 43(4), 568-579.
  • Burns, Robert; Nichols, Linda O.; Graney, Marshall J.; Martindale-Adams, Jennifer; Lummus, Alan. (2006). Cognitive abilities of Alzheimer's patients: perceptions of black and white caregivers. International Journal of Aging and Human Development 62(3): 209-19.
  • Cloutterbuck, J. (2003). African American dementia caregivers: The duality of respect. Dementia, 2(2), 221-241.
  • Connell, C., & Gibson, G. (1997). Racial, ethnic, and cultural differences in dementia caregiving: Review and analysis. Gerontologist, 37(3), 355-364.
  • Connell, C. M., Shaw, B. A., Holmes, S. B., & Foster, N. L. (2001). Caregivers' attitudes toward their family members' participation in Alzheimer disease research: Implications for recruitment and retention. Alzheimer Disease & Associated Disorders, 15(3), 137-145.
  • Coogle, C. L. (2002). The Families Who Care project: Meeting the educational needs of African American and rural family care givers dealing with dementia. Educational Gerontology, 28(1), 59-71.
  • Cox, C. (1999). Race and caregiving: Patterns of service use by African American and white caregivers of persons with Alzheimer's disease. Journal of Gerontological Social Work, 32(2), 5-19.
  • Cox, C. (1999). Service needs and use: A further look at the experiences of African American and white caregivers seeking Alzheimer's assistance. American Journal of Alzheimer's Disease, 14(2), 93-101.
  • Cox, C., & Monk, A. (1990). Minority caregivers of dementia victims: A comparison of black and Hispanic families. Journal of Applied Gerontology, 9(3), 340-354.
  • Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimer's patients. Health and Social Work, 18(2), 92-100.
  • Crist, J., Armer, J., & Radina, M. (2002). A study in cultural diversity: Caregiving for the Old Order Amish elder with Alzheimer's disease. Journal of Multicultural Nursing & Health, 8(3), 78-85.
  • Culture & caregiving. (1992). Aging, 363/364, 29.
  • Czaja, Sara J., Gallagher-Thompson, Dolores. (2009). Development of the Risk Appraisal Measure: A Brief Screen to Identify Risk Areas and Guide Interventions for Dementia Caregivers. Journal of the American Geriatrics Society, 57(6), 1064-1072.
  • Daker-White, G., Beattie, A. M., Gilliard, J., & Means, R. (2002). Minority ethnic groups in dementia care: A review of service needs, service provision and models of good practice. Aging and Mental Health, 6(2), 101-108.
  • Depp, Colin; Sorocco, Kristen; Kasl-Godley, Julia; Thompson, Larry; Rabinowitz, Yaron; Gallagher-Thompson, Dolores. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry 13(9): 787-794.
  • Dilworth-Anderson, P., & Gibson, B. E. (1999). Ethnic minority perspectives on dementia, family caregiving, and interventions. Generations, 23(3), 40.
  • Edelman, Perry; Kuhn, Daniel; Fulton, Bradley R.; Kyrouac, Gregory A. (2006). Information and service needs of persons with Alzheimer's disease and their family caregivers living in rural communities. American Journal of Alzheimer's Disease and Other Dementias, 21, 226-33.
  • Elliott, Amanda F.; DeCoster, Jamie. (2010). Enhancing Caregiver Health: Findings from the Resources for Enhancing Alzheimer's Caregiver Health II Intervention. Journal of the American Geriatrics Society, 58(1), 30-37.
  • Gallagher-Thompson, Dolores; Shurgot, Gia Robinson; Rider, Kenneth; Gray, Heather L.; McKibbin, Christine L.; Kraemer, Helena C.; Sephton, Sandra E.; Thompson, Larry W. (2006). Ethnicity, stress and cortisol function in Hispanic and non-Hispanic white women: a preliminary study of family dementia caregivers and non-caregivers. American Journal of Geriatric Psychiatry 14(4): 334-42.
  • Gallagher-Thompson, Dolores; Rabinowitz, Yaron; Tang, Paulette C. Y.; Tse, Collins; Kwo, Elizabeth; Hsu, Shannon; Wang, Peng-Chih; Leung, Laurie; Tong, Hui-Qi; Thompson, Larry W. (2006). Recruiting Chinese Americans for dementia caregiver intervention research: suggestions for success. American Journal of Geriatric Psychiatry, 14:8, 676-83.
  • Gallagher-Thompson, D., Solano, N., Coon, D. W., & Arean, P. A. (2003). Recruitment and retention of Latino dementia family caregivers in intervention research: Issues to face, lessons to learn. Gerontologist, 43(1), 45-51.
  • Hilgeman, Michelle M.; Allen, Rebecca S.; DeCoster, Jamie; Burgio, Louis D. (2007). Positive aspects of caregiving as a moderator of treatment outcome over 12 months. Psychology and Aging, 22(2), 361-371.
  • Hinton, Ladson; Franz, Carol E.; Yeo, Gwen; Levkoff, Sue E. (2005). Conceptions of dementia in a multiethnic sample of family caregivers. Journal of the American Geriatrics Society, 53(8), 1405-1410.
  • Hinton, W. L. (2002). Improving care for ethnic minority elderly and their family caregivers across the spectrum of dementia severity. Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S50-S55.
  • Hinton, W. L., & Levkoff, S. (1999). Constructing Alzheimer's: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine and Psychiatry, 23(4), 453-475.
  • Janevic, M. R., & Connell, C. M. (2001). Racial, ethnic, and cultural differences in the dementia caregiving experience: Recent findings. Gerontologist, 41(3), 334-347.
  • Jervis, L. L., & Manson, S. M. (2002). American Indians/Alaska Natives and dementia. Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S89-95.
  • Kelly, Christopher M.; Williams, Ishan Canty. (2007). Providing dementia-specific services to family caregivers: North Carolina's Project C.A.R.E. program. Journal of Applied Gerontology, 26(4), 399-412.
  • Kim, Jung-Hyun; Knight, Bob G.; Longmire, Crystal V. (2007). The role of familism in stress and coping processes among African American and White dementia caregivers: Effects on mental and physical health. Health Psychology, 26(5), 564-76.
  • Kinoshita, L., & Gallagher-Thompson, D. (2004). Japanese American caregivers of individuals with dementia: An examination of Japanese cultural values and dementia caregiving. Clinical Gerontologist, 27(1/2), 87-102.
  • Knight, B. G.; Longmire, C. V.; Dave, J.; Kim, J. H.; David, S. (2007). Mental health and physical health of family caregivers for persons with dementia: A comparison of African American and White caregivers. Aging & Mental Health, 11(5), 538-46.
  • Korn, Leslie; R˙ser, Rudolph. (2009). A Randomized Trial of a CAM Therapy for Stress Reduction in American Indian and Alaskan Native Family Caregivers Gerontologist 49(3), 368-377.
  • Kosberg, Jordan I.; Kaufman, Allan V.; Burgio, Louis D. (2007). Family caregiving to those with dementia in rural Alabama: Racial similarities and differences. Journal of Aging & Health, 19(1), 3-21.
  • Kosloski, K., Montgomery, R. J. V., & Kamer, T. X. (1999). Differences in the perceived need for assistive services by culturally diverse caregivers of persons with dementia. Journal of Applied Gerontology, 18(2), 239-256.
  • Kosloski, K., Schaefer, J., Allwardt, D., Montgomery, R., & Karner, T. (2002). The role of cultural factors on clients' attitudes toward caregiving, perceptions of service delivery, and service utilization. Home Health Care Services Quarterly, 21(3/4), 65-88.
  • Krull, Amy C. (2005). First signs and normalizations: caregiver routes to the diagnosis of Alzheimer's disease. Journal of Aging Studies, 19(4), 407-417.
  • Lawton, M. P., Rajagopal, D., Brody, E., & Kleban, M. H. (1992). The dynamics of caregiving for a demented elder among black and white families. Journals of Gerontology (Series B), 47(4), S156-S164.
  • Lee, Chin C.; Schulz, Richard. (2010). The Moderating Influence of Demographic Characteristics, Social Support, and Religious Coping on the Effectiveness of a Multicomponent Psychosocial Caregiver Intervention in Three Racial Ethnic Groups. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 65B(2), 185-194.
  • Lee, E. E., & Farran, C. J. (2004). Depression among Korean, Korean American and Caucasian American family caregivers. Journal of Transcultural Nursing, 15(1), 18-25.
  • Lee, Y. R., & Sung, K. T. (1997). Cultural differences in caregiving motivations for demented patients: Korean caregivers versus American caregivers. International Journal of Aging and Human Development, 44(2), 115-127.
  • Lindstrom, Heather A.; Smyth, Kathleen A.; Sami, Susie A.; Dawson, Neal V.; Patterson, Marian B.; Bohinc, Jan H.; Post, Stephen G.; Barber, Melissa J.; Ollerton, Sally; Singer, Mendel. (2006). Medication use to treat memory loss in dementia: perspectives of persons with dementia and their caregivers. Dementia 5(1): 27-50.
  • Liu, Dandan; Hinton, Ladson; Tran, Cindy; Hinton, Devon; Barker, Judith C. (2008). Reexamining the relationships among dementia, stigma, and aging in immigrant Chinese and Vietnamese family caregivers. Journal of Cross-Cultural Gerontology, 23(3), 283-299.
  • Mausbach, B. T., Coon, D. W., Depp, C., Rabinowitz, Y. G., Wilson-Arias, E., Kraemer, H. C., et al. (2004). Ethnicity and time to institutionalization of dementia patients: A comparison of Latina and Caucasian female family caregivers. Journal of the American Geriatrics Society, 52(7), 1077-1084.
  • McCallum, T. J.; Spencer, S. Melinda; Goins, R. Turner. (2008). Lost in summation: Depression among African American female caregivers and noncaregivers. Journal of Cross-Cultural Gerontology, 23(1), 77-84.
  • McCaskill, Gina M.; Burgio, Louis D.; DeCoster, Jamie; Roff, Lucinda Lee. (2011). The use of Morycz's Desire-to-Institutionalize Scale across three racial/ethnic groups. Journal of Aging and Health, 23(1), 195-202.
  • McGinnis, Kathleen A.; Schulz, Richard; Stone, Roslyn A.; Klinger, Julie; Mercurio, Rocco. (2006) Concordance of race or ethnicity of interventions and caregivers of dementia patients: relationship to attrition and treatment outcomes in the REACH study. Gerontologist, 46(7), 449-55.
  • Miller, B. H., & Guo, S. (2000). Social support for spouse caregivers of persons with dementia. Journals of Gerontology (Series B), 55B(3), S163-S172.
  • Milne, Alisoun; Chryssanathopoulou, Christina. (2005). Dementia care-giving in Black and Asian populations: Reviewing and refining the research agenda. Journal of Community and Applied Social Psychology, 15(5), 319-337.
  • Mitrani, Victoria B.; Feaster, Daniel J.; McCabe, Brian E.; Czaja, Sara J.; Szapecznik, Jose. (2005). Adapting the Structural Family Systems Rating to assess patterns of interaction in families of dementia caregivers. Gerontologist, 45(4), 445-455.
  • Mitrani, Victoria B.; Lewis, John E.; Feaster, Daniel J.; Czaja, Sara J.; Eisdorfer, Carl; Schulz, Richard; Szapocznik, Jose. (2005). Role of family functioning in the stress process of dementia caregivers: a structural family framework. Gerontologist 46(1): 97-105.
  • Montoro-Rodriguez, Julian, Gallagher-Thompson, Dolores. (2009). The role of resources and appraisals in predicting burden among Latina and non-Hispanic white female caregivers: A test of an expanded socio-cultural model of stress and coping. Aging and Mental Health, 13(5), 648-658.
  • Morano, C. L., & Bravo, M. (2002). A psychoeducational model for Hispanic Alzheimer's disease caregivers. Gerontologist, 42(1), 122-126.
  • Nápoles, Anna M.; Chadiha, Letha; Eversley, Rani; Moreno-John, Gina. (2010). Developing culturally sensitive dementia caregiver interventions: Are we there yet? American Journal of Alzheimer's Disease and Other Dementias 25(5), 389-406.
  • Pearlin, L. I., Harrington, C., Lawton, M. P., Montgomery, R. J. V., & Zarit, S. H. (2001). An overview of the social and behavioral consequences of Alzheimer's disease. Aging & Mental Health, 5(2), 3-6.
  • Quinn, A., & Marsh, G. (2002). Caring for home patients with dementia of the Alzheimer's type: A cross-cultural study... 35th Annual Communicating Nursing Research Conference/16th Annual WIN Assembly, "Health Disparities: Meeting the Challenge," held April 18-20, 2002, Palm Springs, California. Communicating Nursing Research, 35(10), 338.
  • Ready, Rebecca E.; Ott, Brian R.; Grace, Janet. (2006). Insight and cognitive impairment: effects on quality-of-life reports from mild cognitive impairment and Alzheimer's disease patients. American Journal of Alzheimer's Disease and Other Dementias, 21, 242-48.
  • Reilly, Margaret C.; Relkin, Norman R.; Zbrozek, Arthur S. (2006). Development and testing of a new outcome measure of relationship between patients with Alzheimer's disease and their partners. American Journal of Alzheimer's Disease and Other Dementias, 21, 249-57.
  • Roff, L. L., Burgio, L. D., Gitlin, L., Nichols, L., Chaplin, W., & Hardin, J. M. (2004). Positive aspects of Alzheimer's caregiving: The role of race. Journals of Gerontology (Series B), 59B(4), P185-P190.
  • Shanley, Chris. (2006). Developing more flexible approaches to respite for people living with dementia and their carers. American Journal of Alzheimer's Disease and Other Dementias, 21, 234-41.
  • Shenk, Dena. (2009). Moral agency of direct care workers and the people for whom they care. Journal of Aging, Humanities and the Arts, 3(4), 285-99.
  • Smits, Carolien H. M.; de Lange, Jacomine; Droes, Rose-Marie; Meiland, Franka; et. al. (2007). Effects of combined intervention programmes for people with dementia living at home and their caregivers: A systematic review. International Journal of Geriatric Psychiatry, 22(12), 1181-1193.
  • Spira, Adam P.; Beaudreau, Sherry A.; Jimenez, Daniel; Kierod, Krystal. (2007). Experiential avoidance, acceptance, and depression in dementia family caregivers. Clinical Gerontologist, 30(4), 55-64.
  • Spurlock, Wanda Raby. (2005). Spiritual well-being and caregiver burden in Alzheimer's caregivers. Geriatric Nursing, 26(3), 154-161.
  • Sterritt, P. F., & Pokorny, M. E. (1998). African-American caregiving for a relative with Alzheimer's disease. Geriatric Nursing, 19(3), 133-134.
  • Weitzman, P. F., Chee, Y. K., & Levkoff, S. E. (1999). A social cognitive examination of responses to family conflicts by African-American and Chinese-American caregivers. American Journal of Alzheimer's Disease, 14(6), 343-350.
  • Williams, Ishan C. (2005). Emotional health of black and white dementia caregivers: a contextual examination. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 60B(6), P287-P295.
  • Zhan, Lin. (2004). Caring for family members with Alzheimer's disease: Perspectives from Chinese American caregivers. Journal of Gerontological Nursing, 30(8), 19-29.

Coping with Caregiving

  • Adams, B., Aranda, M. P., Kemp, B., & Takagi, K. A. (2002). Ethnic and gender differences in distress among Anglo American, African American, Japanese American, and Mexican American spousal caregivers of persons with dementia. Journal of Clinical Geropsychology, 8(4), 279-301.
  • Bank, Adam L.; Arguelles, Soledad; Rubert, Mark; Eisdorfer, Carl; Czaja, Sara J. (2006). The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist 46(1): 134-38.
  • Choo, W. Y., Low, W. Y., Karina, R., Poip, P. J., Ebenezer, E., & Prince, M. J. (2003). Social support and burden among caregivers of patients with dementia in Malaysia. Asia-Pacific Journal of Public Health, 15(1), 23-29.
  • Chun, M.; Knight, B. G.; Youn, G. (2007). Differences in stress and coping models of emotional distress among Korean, Korean-American, and white-American caregivers. Aging and Mental Health, 11(1), 20-9.
  • Clay, Olivio J.; Roth, David L.; Wadley, Virginia G.; Haley, William E. (2008). Changes in social support and their impact on psychosocial outcome over a 5-year period for African American and White dementia caregivers. International Journal of Geriatric Psychiatry 23(8), 857-862.
  • Coon, D. W., & Edgerly, E. S. (1999). The personal and social consequences of Alzheimer disease. Genetic Testing, 3(1), 29-36.
  • Coon, David W., Evans, Bronwynne. (2009). Empirically Based Treatments for Family Caregiver Distress: What Works and Where Do We Go from Here? Geriatric Nursing, 30(6), 426-436.
  • Cox, C. (1995). Comparing the experiences of black and white caregivers of dementia patients. Social Work, 40(3), 343-349.
  • Cox, C. (1995). Meeting the mental health needs of the caregiver: The impact of Alzheimer's disease on Hispanic and African American families. In D. K. Padgett (Ed.), Handbook on ethnicity, aging, and mental health (pp. 265-283). Westport, CT: Greenwood Press.
  • Cox, C., & Monk, A. (1996). Strain among caregivers: Comparing the experiences of African American and Hispanic caregivers of Alzheimer's relatives. International Journal of Aging and Human Development, 43(2), 93-106.
  • Czaja, Sara J., Gallagher-Thompson, Dolores. (2009). Development of the Risk Appraisal Measure: A Brief Screen to Identify Risk Areas and Guide Interventions for Dementia Caregivers. Journal of the American Geriatrics Society, 57(6), 1064-1072.
  • Dilworth-Anderson, P., Goodwin, P. Y., & Williams, S. W. (2004). Can culture help explain the physical health effects of caregiving over time among African American caregivers? Journals of Gerontology (Series B), 59B(3), S138-S145.
  • Dungee-Anderson, D., & Beckett, J. O. (1992). Alzheimer's disease in African American and white families: A clinical analysis. Smith College Studies in Social Work, 62(2), 155-168.
  • Elliott, Amanda F.; DeCoster, Jamie. (2010). Enhancing Caregiver Health: Findings from the Resources for Enhancing Alzheimer's Caregiver Health II Intervention. Journal of the American Geriatrics Society, 58(1), 30-37.
  • Farran, C. J., Miller, B. H., Kaufman, J. E., & Davis, L. (1997). Race, finding meaning and caregiver distress. Journal of Aging and Health, 9(3), 316-333.
  • Gallagher-Thompson, D., Coon, D. W., Solano, N., Ambler, C., Rabonowitz, Y., & Thompson, L. W. (2003). Changes in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: Site-specific results from the REACH National Collaborative Study. Gerontologist, 43(4), 580-591.
  • Haley, W. E., Roth, D. L., Coleton, M. I., Ford, G. R., West, C. A. C., Collins, R. P., et al. (1996). Appraisal, coping, and social support as mediators of well-being in black and white family caregivers of patients with Alzheimer's disease. Journal of Consulting and Clinical Psychology, 64(1), 121-129.
  • Harwood, D. G., Barker, W. W., Cantillon, M., Loewenstein, D. A., Ownby, R. L., & Duara, R. (1998). Depressive symptomatology in first-degree family caregivers of Alzheimer disease patients: A cross-ethnic comparison. Alzheimer Disease & Associated Disorders, 12(4), 340-346.
  • Hinrichsen, G. A., & Ramirez, M. (1992). Black and white dementia caregivers: A comparison of their adaptation, adjustment, and service utilization. Gerontologist, 32(3), 375-381.
  • Hinton, W. L., Fox, K., & Levkoff, S. (1999). Introduction: Exploring the relationships among aging, ethnicity, and family caregiving. Culture, Medicine and Psychiatry, 23(4), 403-413.
  • Ho, C. J., Weitzman, P. F., Cui, X., & Levkoff, S. E. (2000). Stress and service use among minority caregivers to elders with dementia. Journal of Gerontological Social Work, 33(1), 67-88.
  • Kim, Jung-Hyun; Knight, Bob G.; Longmire, Crystal V. (2007). The role of familism in stress and coping processes among African American and White dementia caregivers: Effects on mental and physical health. Health Psychology, 26(5), 564-76.
  • Knight, B. G., Silverstein, M., McCallum, T. J., & Fox, L. S. (2000). A sociocultural stress and coping model for mental health outcomes among African American caregivers in southern California. Journals of Gerontology (Series B), 55B(3), P142-P150.
  • Korn, Leslie, R˙ser, Rudolph. (2009). A Randomized Trial of a CAM Therapy for Stress Reduction in American Indian and Alaskan Native Family Caregivers Gerontologist 49(3), 368-377.
  • Lawton, M. P., Rajagopal, D., Brody, E., & Kleban, M. H. (1992). The dynamics of caregiving for a demented elder among black and white families. Journals of Gerontology (Series B), 47(4), S156-S164.
  • Leblanc, A.J., Driscoll, A.K. & Pearlin, L.I. (2004). Religiosity and the expansion of caregiver stress. Aging and Mental Health, 8(5), 410-421.
  • Lee, E. E., & Farran, C. J. (2004). Depression among Korean, Korean American and Caucasian American family caregivers. Journal of Transcultural Nursing, 15(1), 18-25.
  • Levkoff, S., Levy, B., & Weitzman, P. F. (1999). The role of religion and ethnicity in the help seeking of minority family caregivers of elders with Alzheimer's disease and related disorders. Journal of Cross Cultural Gerontology, 14(4), 335-356.
  • Liu, Weiling; Gallagher-Thompson, Dolores. (2009). Impact of dementia caregiving: Risks, strains, and growth. In: Qualls, Sara H.; Zarit, Steven H.(eds.) Aging families and caregiving. Hoboken: John Wiley & Sons Inc.
  • Lowenstein, A. (1999). Caring for parents with Alzheimer's: Comparing perceptions of physical and mental health in the Jewish and Arab sectors in Israel. Journal of Cross Cultural Gerontology, 14(1), 65-76.
  • Losada, A.; Shurgot, G. Robinson; Knight, B.G.; Marquez, M.; Montorio, I.; Izal, M.; Ruiz, M.A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging and Mental Health 10(1): 69-76.
  • Mackenzie, Jenny. (2006). Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia, 5(2), 233-47.
  • Mausbach, B. T., Coon, D. W., Cardenas, V., & Thompson, L. W. (2003). Religious coping among Caucasian and Latina dementia caregivers. Journal of Mental Health and Aging, 9(2), 97-110.
  • McCallum, T.J.; Sorocco, Kristen H.; Fritsch, Thomas. (2006). Mental health and diurnal salivary cortisol patterns among African American and European American female dementia family caregivers. American Journal of Geriatric Psychiatry, 14(8), 684-93.
  • Mintzer, J., Rubert, M., Loewenstein, D., Gamez, E., Millor, A., Quinteros, R., et al. (1992). Daughters caregiving for Hispanic and non-Hispanic Alzheimer patients: Does ethnicity make a difference? Community Mental Health Journal, 28(4), 293-303.
  • Mintzer, J. E., & Macera, C. A. (1992). Prevalence of depressive symptoms among white and African-American caregivers of demented patients. American Journal of Psychiatry, 149(4), 575-576.
  • Montoro-Rodriguez, Julian, Gallagher-Thompson, Dolores. (2009). The role of resources and appraisals in predicting burden among Latina and non-Hispanic white female caregivers: A test of an expanded socio-cultural model of stress and coping. Aging and Mental Health, 13(5), 648-658.
  • Montoro-Rodríguez, Julián; Kosloski, Karl; Kercher, Kyle; Montgomery, Rhonda J. V. (2009). The impact of social embarrassment on caregiving distress in a multicultural sample of caregivers. Journal of Applied Gerontology, 28(2), 195-217.
  • Morano, C. L. (2003). The role of appraisal and expressive support in mediating strain and gain in Hispanic Alzheimer's disease caregivers. Journal of Ethnic & Cultural Diversity in Social Work, 12(2), 1-18.
  • Mukadam, Naaheed; Cooper, Claudia; Livingston, Gill. (2011). A systematic review of ethnicity and pathways to care in dementia. International Journal of Geriatric Psychiatry 26(1), 12-20.
  • Nightingale, M. (2003). Religion, spirituality, and ethnicity: What it means for caregivers of persons with Alzheimer's disease and related disorders. Dementia, 2(3), 379-391.
  • Owen, J., Goode, K., & Haley, W. (2001). End of life care and reactions to death in African-American and white family caregivers of relatives with Alzheimer's disease. Omega: Journal of Death and Dying, 43(4), 349-361.
  • Pang, L. W., Chow, T. W., Cummings, J. L., Leung, V. P. Y., Chiu, H. F. K., Lam, L. C. W., et al. (2002). Effect of neuropsychiatric symptoms of Alzheimer's disease on Chinese and American caregivers. International Journal of Geriatric Psychiatry, 17(1), 29-34.
  • Patterson, T. L., Semple, S. J., Shaw, W. S., Yu, E., He, Y., Zhang, M. Y., et al. (1998). The cultural context of caregiving: A comparison of Alzheimer's caregivers in Shanghai, China and San Diego, California. Psychological Medicine, 28(5), 1071-1084.
  • Roth, David L.; Ackerman, Michelle L.; Okonkwo, Ozioma C.; Burgio, Louis D. (2008). Four-factor model of depressive symptoms in dementia caregivers: a structural equation model of ethnic differences. Psychology and Aging, 23(3), 567-576.
  • Roth, D. L., Haley, W. E., Owen, J. E., Clay, O. J., & Goode, K. T. (2001). Latent growth models of the longitudinal effects of dementia caregiving: A comparison of African American and white family caregivers. Psychology and Aging, 16(3), 427-436.
  • Salguero, R. H., Kohn, R., Salguero, L. F., & Marotta, C. A. (1998). Caregivers of persons with Alzheimer's disease: Cultural differences in perceived caregiver burden in Guatemala and Rhode Island. Journal of Cross Cultural Gerontology, 13(3), 229-240.
  • Shaw, W., Patterson, T., Semple, S., Grant, I., Yu, E., Zhang, M., et al. (1997). A cross-cultural validation of coping strategies and their associations with caregiving distress. Gerontologist, 37(4), 490-504.
  • Sorensen, Silvia; Pinquart, Martin. (2005). Racial and ethnic differences in the relationship of caregiving stressors, resources, and sociodemographic variables to caregiver depression and perceived physical health. Aging and Mental Health 9(5): 482-495.
  • Sun, Fei; Kosberg, Jordan I.; Leeper, James; Kaufman, Allan V.; Burgio, Louis. (2010). Racial differences in perceived burden of rural dementia caregivers: The mediating effect of religiosity. Journal of Applied Gerontology 29(3), 290-307.
  • Spira, Adam P.; Beaudreau, Sherry A.; Jimenez, Daniel; Kierod, Krystal. (2007). Experiential avoidance, acceptance, and depression in dementia family caregivers. Clinical Gerontologist, 30(4), 55-64.
  • Steinberg, M., Munro, C. A., Samus, Q., Rabins, P. V., Brandt, J., & Lyketsos, C. G. (2004). Patient predictors of response to treatment of depression in Alzheimer's disease: The DIADS study. International Journal of Geriatric Psychiatry, 19(2), 144-150.
  • Thompson, L. W., Solano, N., Kinoshita, L., Coon, D. W., Mausbach, B. T., & Gallagher-Thompson, D. (2002). Pleasurable activities and mood: Differences between Latina and Caucasian dementia family caregivers. Journal of Mental Health and Aging, 8(3), 211-224.
  • Toth-Cohen, Susan. (2004). Factors influencing appraisal of upset in black caregivers of persons with Alzheimer disease and related dementias. Alzheimer Disease and Associated Disorders, 18(4), 247-255.
  • Trinh, Nhi-Ha; Ahmed, Iqbal. (2009). Acculturation and Asian American elderly. In: Trinh, Nhi-Ha; Rho, Yanni Chun; Lu, Francis G.; Sanders, Kathy Marie (eds.) Handbook of mental health and acculturation in Asian American families. Totowa, NJ: Humana Press.
  • Valle, R., Yamada, A.M., Barrio, C. (2004). Ethnic differences in social network help-seeking strategies among Latino and Euro-American dementia caregivers. Aging and Mental Health, 8(6), 535-543.
  • Weitzman, P. F., & Levkoff, S. E. (2000). Combining qualitative and quantitative methods in health research with minority elders: Lessons from a study of dementia caregiving. Field Methods, 12(3), 195-208.
  • Wood, J. B., & Parham, I. A. (1990). Coping with perceived burden: Ethnic and cultural issues in Alzheimer's family caregiving. Journal of Applied Gerontology, 9(3), 325-339.
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Explore other aspects of caregivers and caregiving by following the links below:

Awareness and Understanding Cultural Concept of Disease Family or Community Support Interventions and Outreach Resource Access or Use

Institute on Aging
720 Martin Luther King Blvd., CB #1030
Chapel Hill, NC 27599-1030
phone 919-966-9444 | fax 919-966-0510

This page was last modified on: Thursday, 23-Aug-2012 09:31:13 EDT 12/13/11