Social & behavioral research on Alzheimer's Disease and dementia in diverse populations: A bibliography

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Hispanic American, Latin American or Caribbean (73)

Hispanic American | Latin American or Caribbean

Cuban American

Mitrani, Victoria B.; Lewis, John E.; Feaster, Daniel J.; Czaja, Sara J.; Eisdorfer, Carl; Schulz, Richard; Szapocznik, Jose. (2005). Role of family functioning in the stress process of dementia caregivers: a structural family framework. Gerontologist 46(1): 97-105. Williams, C., Tappen, R., Buscemi, C., Rivera, R., & Lezcano, J. (2001). Obtaining family consent for participation in Alzheimer's research in a Cuban-American population: Strategies to overcome the barriers. American Journal of Alzheimer's Disease and Other Dementias, 16(3), 183-187.

Mexican American

Adams, B., Aranda, M. P., Kemp, B., & Takagi, K. A. (2002). Ethnic and gender differences in distress among Anglo American, African American, Japanese American, and Mexican American spousal caregivers of persons with dementia. Journal of Clinical Geropsychology, 8(4), 279-301.

Puerto Rican

Figueroa, Raul; Steenland, Kyle; MacNeil, Jessica R.; Levey, Allan I.; Vega, Irving E. (2008). Geographical differences in the occurrence of Alzheimer's disease mortality: United States versus Puerto Rico. American Journal of Alzheimer's Disease and Other Dementias, 23(5), 462-469.

Hispanic American (general)

Aranda, M. P., Villa, V. M., Trejo, L., Ramirez, R., & Ranney, M. (2003). El Portal Latino Alzheimer's Project: Model program for Latino caregivers of Alzheimer's disease-affected people. Social Work, 48(2), 259-271. Ayalon, L., & Arean, P. A. (2004). Knowledge of Alzheimer's disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19(1), 51-57. Bank, Adam L.; Arguelles, Soledad; Rubert, Mark; Eisdorfer, Carl; Czaja, Sara J. (2006). The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist 46(1): 134-38. Briones, D. F., Ramirez, A. L., Guerrero, M., & Ledger, E. (2002). Determining cultural and psychosocial factors in Alzheimer disease among Hispanic populations. Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S86-S88. Chen, J. C., Borson, S., & Scanlan, J. M. (2000). Stage-specific prevalence of behavioral symptoms in Alzheimer's disease in a multi-ethnic community sample. American Journal of Geriatric Psychiatry, 8(2), 123-133. Clark, Christopher M.; DeCarli, Charles; Mungas, Dan; Chui, Helena I.; Higdon, Roger; Nunez, Jessica; Fernandez, Henrique; Negron, Mirna; Manly, Jennifer; Ferris, Steven; Perez, Angelica; Torres, Migdalia; Ewbank, Douglas; Glosser, Guila; van Belle, Gerald. (2005). Earlier onset of Alzheimer Disease symptoms in Latino individuals compared with Anglo individuals. Archives of Neurology, 62(5), 774-778. Connell, Cathleen M.; Roberts, J. Scott; McLaughlin, Sara J. (2007). Public opinion about Alzheimer disease among Blacks, Hispanics and Whites: Results from a national survey. Alzheimer Disease & Associated Disorders, 21(3), 232-240. Cooper, Claudia; Livingston, Gill. (2010). A Systematic Review and Meta-Analysis of Ethnic Differences in Use of Dementia Treatment, Care, and Research. American Journal of Geriatric Psychiatry, 18(3), 193-203. Cox, C. (1995). Meeting the mental health needs of the caregiver: The impact of Alzheimer's disease on Hispanic and African American families. In D. K. Padgett (Ed.), Handbook on ethnicity, aging, and mental health (pp. 265-283). Westport, CT: Greenwood Press. Cox, C., & Monk, A. (1990). Minority caregivers of dementia victims: A comparison of black and Hispanic families. Journal of Applied Gerontology, 9(3), 340-354. Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimer's patients. Health and Social Work, 18(2), 92-100. Cox, C., & Monk, A. (1996). Strain among caregivers: Comparing the experiences of African American and Hispanic caregivers of Alzheimer's relatives. International Journal of Aging and Human Development, 43(2), 93-106. Elliott, Amanda F.; DeCoster, Jamie. (2010). Enhancing Caregiver Health: Findings from the Resources for Enhancing Alzheimer's Caregiver Health II Intervention. Journal of the American Geriatrics Society, 58(1), 30-37. Fillenbaum, Gerda G.; Kuchibhatla, Maragatha; Henderson, Victor W.; Clark, Christopher M.; Taussig, I. Maribel. (2007). Comparison of performance on the CERAD Neurological Battery of Hispanic patients and cognitively normal controls at two sites. Clinical Gerontologist, 30(3), 1-22. Gallagher-Thompson, Dolores; Shurgot, Gia Robinson; Rider, Kenneth; Gray, Heather L.; McKibbin, Christine L.; Kraemer, Helena C.; Sephton, Sandra E.; Thompson, Larry W. (2006). Ethnicity, stress and cortisol function in Hispanic and non-Hispanic white women: a preliminary study of family dementia caregivers and non-caregivers. American Journal of Geriatric Psychiatry 14(4): 334-42. Gallagher-Thompson, D., Coon, D. W., Solano, N., Ambler, C., Rabonowitz, Y., & Thompson, L. W. (2003). Changes in indices of distress among Latino and Anglo female caregivers of elderly relatives with dementia: Site-specific results from the REACH National Collaborative Study. Gerontologist, 43(4), 580-591. Gallagher-Thompson, D., Haley, W., Guy, D., Rupert, M., Arguelles, T., Zeiss, L. M., et al. (2003). Tailoring psychological interventions for ethnically diverse dementia caregivers. Clinical Psychology, 10(4), 423-438. Gallagher-Thompson, D., Solano, N., Coon, D. W., & Arean, P. A. (2003). Recruitment and retention of latino dementia family caregivers in intervention research: Issues to face, lessons to learn. Gerontologist, 43(1), 45-51. Gallagher-Thompson, D., Haynie, D., Takagi, K., Valverde, I., & Thompson, L. (2000). Impact of an Alzheimer's disease education program: Focus on Hispanic families. Gerontology & Geriatrics Education, 20(3), 25-40. Harwood, D. G., Barker, W. W., Cantillon, M., Loewenstein, D. A., Ownby, R. L., & Duara, R. (1998). Depressive symptomatology in first-degree family caregivers of Alzheimer disease patients: A cross-ethnic comparison. Alzheimer Disease & Associated Disorders, 12(4), 340-346. Harwood, D. G., Barker, W. W., Loewenstein, D. A., Ownby, R. L., St.George-Hyslop, P., Mullan, M., et al. (1999). A cross-ethnic analysis of risk factors for AD in white Hispanics and white non-Hispanics. Neurology, 52(3), 551-556. Henderson, J. N., M. Gutierrez-Mayka, J. G., & Boyd, S. (1993). A model for Alzheimer's disease support group development in African-American and Hispanic populations. Gerontologist, 33(3), 409-414. Hernandez, Santiago; McClendon, McKee J.; Zhou, Xiao-Hua Andrew; Sachs, Michael; Lerner, Alan J. (2010). Pharmacological treatment of Alzheimer's disease: Effect of race and demographic variables. Journal of Alzheimer's Disease, 19(2), 665-672. Hinton, W. L., & Levkoff, S. (1999). Constructing Alzheimer's: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine and Psychiatry, 23(4), 453-475. Ho, C. J., Weitzman, P. F., Cui, X., & Levkoff, S. E. (2000). Stress and service use among minority caregivers to elders with dementia. Journal of Gerontological Social Work, 33(1), 67-88. Hohl, U., Grundman, M., Salmon, D. P., Thomas, R. G., & Thal, L. J. (1999). Mini-mental state examination and Mattis dementia rating scale performance differs in Hispanic and non-Hispanic Alzheimer's disease patients. Journal of the International Neuropsychological Society, 5(4), 301-307. Hou, Craig E.; Yaffe, Kristine; Perez-Stable, Eliseo J.; Miller, Bruce L. (2006). Frequency of dementia etiologies in four ethnic groups. Dementia and Geriatric Cognitive Disorders, 22(1), 42-7. Kosloski, K., Montgomery, R. J. V., & Kamer, T. X. (1999). Differences in the perceived need for assistive services by culturally diverse caregivers of persons with dementia. Journal of Applied Gerontology, 18(2), 239-256. Kosloski, K., Schaefer, J., Allwardt, D., Montgomery, R., & Karner, T. (2002). The role of cultural factors on clients' attitudes toward caregiving, perceptions of service delivery, and service utilization. Home Health Care Services Quarterly, 21(3/4), 65-88. Lee, Chin C.; Schulz, Richard. (2010). The Moderating Influence of Demographic Characteristics, Social Support, and Religious Coping on the Effectiveness of a Multicomponent Psychosocial Caregiver Intervention in Three Racial Ethnic Groups. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 65B(2), 185-194. Levkoff, S., Levy, B., & Weitzman, P. F. (1999). The role of religion and ethnicity in the help seeking of minority family caregivers of elders with Alzheimer's disease and related disorders. Journal of Cross Cultural Gerontology, 14(4), 335-356. Losada, A.; Shurgot, G. Robinson; Knight, B.G.; Marquez, M.; Montorio, I.; Izal, M.; Ruiz, M.A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging and Mental Health 10(1): 69-76. Luchsinger, Jose A.; Reitz, Christiane; Patel, Bindu. (2007). Relation of diabetes to mild cognitive impairment. Archives of Neurology, 64(4), 570-75. Mausbach, B. T., Coon, D. W., Cardenas, V., & Thompson, L. W. (2003). Religious coping among Caucasian and Latina dementia caregivers. Journal of Mental Health and Aging, 9(2), 97-110. McCaskill, Gina M.; Burgio, Louis D.; DeCoster, Jamie; Roff, Lucinda Lee. (2011). The use of Morycz's Desire-to-Institutionalize Scale across three racial/ethnic groups. Journal of Aging and Health, 23(1), 195-202. Mausbach, B. T., Coon, D. W., Depp, C., Rabinowitz, Y. G., Wilson-Arias, E., Kraemer, H. C., et al. (2004). Ethnicity and time to institutionalization of dementia patients: A comparison of Latina and Caucasian female family caregivers. Journal of the American Geriatrics Society, 52(7), 1077-1084. Mehta, K. M.; Yaffe, K.; Perez-Stable, E. J.; Barnes, D.; Kurland, B. F.; Miller, B. L. (2008). Race/ethnic differences in AD survival in US Alzheimer's Disease Centers. Neurology, 70(14), 1163-1170. Mintzer, J., Rubert, M., Loewenstein, D., Gamez, E., Millor, A., Quinteros, R., et al. (1992). Daughters caregiving for Hispanic and non-Hispanic Alzheimer patients: Does ethnicity make a difference? Community Mental Health Journal, 28(4), 293-303. Montoro-Rodriguez, Julian, Gallagher-Thompson, Dolores. (2009). The role of resources and appraisals in predicting burden among Latina and non-Hispanic white female caregivers: A test of an expanded socio-cultural model of stress and coping. Aging and Mental Health, 13(5), 648-658. Morano, C. L. (2003). The role of appraisal and expressive support in mediating strain and gain in Hispanic Alzheimer's disease caregivers. Journal of Ethnic & Cultural Diversity in Social Work, 12(2), 1-18. Morano, C. L., & Bravo, M. (2002). A psychoeducational model for Hispanic Alzheimer's disease caregivers. Gerontologist, 42(1), 122-126. Orengo, Claudia A; Khan, Jennifer; Kunik, Mark E.; et al. (2008). Agression in individuals newly diagnosed with dementia. American Journal of Alzheimer's Disease and Other Dementias, 23(3), 227-232. Ortiz, Freddy; Fitten, L. Jaime; Cummings, Jeffrey L.; Hwang, Sun; Fonseca, Maureen. (2006). Neuropsychiatric and behavioral symptoms in a community sample of Hispanics with Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 21(4), 263-73. Ortiz, F., & Fitten, L. J. (2000). Barriers to healthcare access for cognitively impaired older Hispanics. Alzheimer Disease & Associated Disorders, 14(3), 141-150. Roth, David L.; Ackerman, Michelle L.; Okonkwo, Ozioma C.; Burgio, Louis D. (2008). Four-factor model of depressive symptoms in dementia caregivers: a structural equation model of ethnic differences. Psychology and Aging, 23(3), 567-576. Sink, K. M., Covinsky, K. E., Newcomer, R., & Yaffe, K. (2004). Ethnic differences in the prevalence and pattern of dementia-related behaviors. Journal of the American Geriatrics Society, 52(8), 1277-1283. Steffens, David C., Plassman, Brenda L.(2009). Prevalence of depression among older Americans: the Aging, Demographics and Memory Study. International Psychogeriatrics, 21(5), 879-888. Thompson, L. W., Solano, N., Kinoshita, L., Coon, D. W., Mausbach, B. T., & Gallagher-Thompson, D. (2002). Pleasurable activities and mood: Differences between Latina and Caucasian dementia family caregivers. Journal of Mental Health and Aging, 8(3), 211-224. Valle, R., Yamada, A.M., Barrio, C. (2004). Ethnic differences in social network help-seeking strategies among Latino and Euro-American dementia caregivers. Aging and Mental Health, 8(6), 535-543. Venketasubramanian, N.; Sahadevan, S.; Kua, E.H.; Chen, C.P.L.; Ng, T.-P.. (2011). Interethnic differences in dementia epidemiology: Global and Asia-Pacific perspectives. Dementia and Geriatric Cognitive Disorders Special issue: Dementia: The Asia-Pacific perspectives, 30(6), 492-498. Weitzman, P. F., & Levkoff, S. E. (2000). Combining qualitative and quantitative methods in health research with minority elders: Lessons from a study of dementia caregiving. Field Methods, 12(3), 195-208. Wilcox, Sara, Riu Liu. (2009). Perceptions and Beliefs About the Role of Physical Activity and Nutrition on Brain Health in Older Adults. Gerontologist, 49 (Supplementa1). S61-S71. Williams, Christine L.; Tappen, Ruth M.; Rosselli, Monica; Keane, Florence; Newlin, Kelley. (2010). Willingness to be screened and tested for cognitive impairment: Cross-cultural comparison. American Journal of Alzheimer's Disease and Other Dementias, 25(2), 160-166. Winslow, Betty Wehtje; Flaskerud, Jacquelyn H. (2009). Deciding to place a relative in long-term care: 'We really don't do that.' Issues in Mental Health Nursing, 30(3), 197-198. Yeo, G., Gallagher-Thompson, D., & Lieberman, M. (1996). Variations in dementia characteristics by ethnic category. In D. Gallagher-Thompson & G. Yeo (Eds.), Ethnicity and the dementias (pp. 21-30). Philadelphia, PA: Taylor & Francis. Zuckerman, Ilene H.; Ryder, Priscilla T.; Simoni-Wastila, Linda; Shaffer, Thomas; Sato, Masayo; Zhao, Lirong; Stuart, Bruce. (2008) Racial and ethnic disparities in the treatment of dementia among Medicare beneficiaries. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 63B(5), S328-S333.

Latin American or Caribbean

African Caribbean

Cohen, C. I. (2000). Racial differences in neuropsychiatric symptoms among dementia patients: a comparison of African Americans and whites. International Psychogeriatrics, 12(Suppl. 1), 395-402. Cohen, C. I., Hyland, K., & Magai, C. (1998). Depression among African American nursing home patients with dementia. American Journal of Geriatric Psychiatry, 6(2), 162-175. Cohen, C. I., Hyland, K., & Magai, C. (1998). Interracial and intraracial differences in neuropsychiatric symptoms, sociodemography, and treatment among nursing home patients with dementia. Gerontologist, 38(3), 353-361. Cohen, C. I., & Magai, C. (1999). Racial differences in neuropsychiatric symptoms among dementia outpatients. American Journal of Geriatric Psychiatry, 7(1), 57-63. Williams, Christine L.; Tappen, Ruth M.; Rosselli, Monica; Keane, Florence; Newlin, Kelley. (2010). Willingness to be screened and tested for cognitive impairment: Cross-cultural comparison. American Journal of Alzheimer's Disease and Other Dementias, 25(2), 160-166.

Caribbean

Manly, Jennifer J.; Schupf, Nicole; Stern, Yaakov; Brickman, Adam M.; Tang, Ming-X.; Mayeux, Richard. (2011). Telephone-based identification of mild cognitive impairment and dementia in a multicultural cohort. Archives of Neurology, 68(5), 607-614. Manly, Jennifer J.; Tang, Ming-X.; Schupf, Nicole; Stern, Yaakov; Vonsattel, Jean-Paul G.; Mayeux, Richard. (2008). Frequency and course of mild cognitive impairment in a multiethnic community. Annals of Neurology, 63(4), 494-506. Prince, M., Acosta, D., Chiu, H., Scazufca, M., & Varghese, M. (2003). Dementia diagnosis in developing countries: a cross-cultural validation study. Lancet, 361(9361), 909.

Latin American

Leibing, A. (2002). Flexible hips? On Alzheimer's disease and aging in Brazil. Cultural Gerontology, 17(3), 213-232. Prince, M., Acosta, D., Chiu, H., Scazufca, M., & Varghese, M. (2003). Dementia diagnosis in developing countries: a cross-cultural validation study. Lancet, 361(9361), 909. Salguero, R. H., Kohn, R., Salguero, L. F., & Marotta, C. A. (1998). Caregivers of persons with Alzheimer's disease: cultural differences in perceived caregiver burden in Guatemala and Rhode Island. Journal of Cross Cultural Gerontology, 13(3), 229-240.