Social & behavioral research on Alzheimer's Disease and dementia in diverse populations: A bibliography

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Family or Community Support (29)

• Austrom, Mary Guerriero; Hartwell, Cora; Moore, Patricia; Perkins, Anthony J.; Damush, Teresa; Unverzagt, Frederick W.; Boustani, Malaz; Hendrie, Hugh C.; Callahan, Christopher M. (2006). An integrated model of comprehensive care for people with Alzheimer's disease and their caregivers in a primary care setting. Dementia: The International Journal of Social Research and Practice, 5(3), 339-52.
• Bank, Adam L.; Arguelles, Soledad; Rubert, Mark; Eisdorfer, Carl; Czaja, Sara J. (2006). The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist 46(1): 134-38.
• Choo, W. Y., Low, W. Y., Karina, R., Poip, P. J., Ebenezer, E., & Prince, M. J. (2003). Social support and burden among caregivers of patients with dementia in Malaysia. Asia-Pacific Journal of Public Health, 15(1), 23-29.
• Clay, Olivio J.; Roth, David L.; Wadley, Virginia G.; Haley, William E. (2008). Changes in social support and their impact on psychosocial outcome over a 5-year period for African American and White dementia caregivers. International Journal of Geriatric Psychiatry 23(8), 857-862.
• Cox, C., & Monk, A. (1990). Minority caregivers of dementia victims: A comparison of black and Hispanic families. Journal of Applied Gerontology, 9(3), 340-354.
• Cox, C., & Monk, A. (1996). Strain among caregivers: Comparing the experiences of African American and Hispanic caregivers of Alzheimer's relatives. International Journal of Aging and Human Development, 43(2), 93-106.
• Crist, J., Armer, J., & Radina, M. (2002). A study in cultural diversity: Caregiving for the Old Order Amish elder with Alzheimer's disease. Journal of Multicultural Nursing & Health, 8(3), 78-85.
• Depp, Colin; Sorocco, Kristen; Kasl-Godley, Julia; Thompson, Larry; Rabinowitz, Yaron; Gallagher-Thompson, Dolores. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry 13(9): 787-794.
• Haley, W. E., Roth, D. L., Coleton, M. I., Ford, G. R., West, C. A. C., Collins, R. P., et al. (1996). Appraisal, coping, and social support as mediators of well-being in black and white family caregivers of patients with Alzheimer's disease. Journal of Consulting & Clinical Psychology, 64(1), 121-129.
• Hinton, Ladson; Franz, Carol E.; Yeo, Gwen; Levkoff, Sue E. (2005). Conceptions of dementia in a multiethnic sample of family caregivers. Journal of the American Geriatrics Society, 53(8), 1405-1410.
• Jett, Kathleen F. (2006). Mind-loss in the African American community: dementia as a normal part of aging. Journal of Aging Studies 20(1): 1-10.
• Jones, Randi S.; Chow, Tiffany W.; Gatz, Margaret. (2006). Asian Americans and Alzheimer's disease: assimiliation, culture and beliefs. Journal of Aging Studies 20(1): 11-25.
• Kim, Jung-Hyun; Knight, Bob G.; Longmire, Crystal V. (2007). The role of familism in stress and coping processes among African American and White dementia caregivers: Effects on mental and physical health. Health Psychology, 26(5), 564-76.
• Kim, S.Y.H.; Kim, H.M.; Langa, K.M.; Karlawish, J.H.T.; Knopman, D.S.; Appelbaum, P.S. (2009). Surrogate consent for dementia research. Neurology, 72(2), 149-155.
• Liu, Dandan; Hinton, Ladson; Tran, Cindy; Hinton, Devon; Barker, Judith C. (2008). Reexamining the relationships among dementia, stigma, and aging in immigrant Chinese and Vietnamese family caregivers. Journal of Cross-Cultural Gerontology, 23(3), 283-299.
• Losada, A.; Shurgot, G. Robinson; Knight, B.G.; Marquez, M.; Montorio, I.; Izal, M.; Ruiz, M.A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging and Mental Health 10(1): 69-76.
• Kelly, Christopher M.; Williams, Ishan Canty. (2007). Providing dementia-specific services to family caregivers: North Carolina's Project C.A.R.E. program. Journal of Applied Gerontology, 26(4), 399-412.
• Mackenzie, Jenny. (2006). Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia, 5(2), 233-47.
• Miller, B. H., & Guo, S. (2000). Social support for spouse caregivers of persons with dementia. Journals of Gerontology (Series B), 55B(3), S163-S172.
• Mitrani, Victoria B.; Feaster, Daniel J.; McCabe, Brian E.; Czaja, Sara J.; Szapecznik, Jose. (2005). Adapting the Structural Family Systems Rating to assess patterns of interaction in families of dementia caregivers. Gerontologist, 45(4), 445-455.
• Mitrani, Victoria B.; Lewis, John E.; Feaster, Daniel J.; Czaja, Sara J.; Eisdorfer, Carl; Schulz, Richard; Szapocznik, Jose. (2005). Role of family functioning in the stress process of dementia caregivers: a structural family framework. Gerontologist 46(1): 97-105.
• Morano, C. L. (2003). The role of appraisal and expressive support in mediating strain and gain in Hispanic Alzheimer's disease caregivers. Journal of Ethnic & Cultural Diversity in Social Work, 12(2), 1-18.
• Mukadam, Naaheed; Cooper, Claudia; Livingston, Gill. (2011). A systematic review of ethnicity and pathways to care in dementia. International Journal of Geriatric Psychiatry 26(1), 12-20.
• Reilly, Margaret C.; Relkin, Norman R.; Zbrozek, Arthur S. (2006). Development and testing of a new outcome measure of relationship between patients with Alzheimer's disease and their partners. American Journal of Alzheimer's Disease and Other Dementias, 21, 249-57.
• Salguero, R. H., Kohn, R., Salguero, L. F., & Marotta, C. A. (1998). Caregivers of persons with Alzheimer's disease: Cultural differences in perceived caregiver burden in Guatemala and Rhode Island. Journal of Cross Cultural Gerontology, 13(3), 229-240.
• Shurgot, Gia Robinson; Knight, Bob G. (2005). Influence of neuroticism, ethnicity, familism, and social support on perceived burden in dementia caregivers: pilot test of the transactional stress and social support model. Journals of Gerontology: Series B: Psychological Sciences and Social Science, 60B No. 6, P331-P334.
• Spira, Adam P.; Beaudreau, Sherry A.; Jimenez, Daniel; Kierod, Krystal. (2007). Experiential avoidance, acceptance, and depression in dementia family caregivers. Clinical Gerontologist, 30(4), 55-64.
• Sun, Fei; Kosberg, Jordan I.; Leeper, James; Kaufman, Allan V.; Burgio, Louis. (2010). Racial differences in perceived burden of rural dementia caregivers: The mediating effect of religiosity. Journal of Applied Gerontology 29(3), 290-307.
• Wood, J. B., & Parham, I. A. (1990). Coping with perceived burden: Ethnic and cultural issues in Alzheimer's family caregiving. Journal of Applied Gerontology, 9(3), 325-339.

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Caregivers and Coping with Caregiving
Cultural Concept of Disease
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