Social & behavioral research on Alzheimer's Disease and dementia in diverse populations: A bibliography

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Cultural Concept of Disease (29)

• Ayalon, Liat; Arean, Patricia; Bornfeld, Heather; Beard, Renee. (2009). Long term care staff beliefs about evidence based practices for the management of dementia and agitation. International Journal of Geriatric Psychiatry, 24(2), 118-124.
• Crist, J., Armer, J., & Radina, M. (2002). A study in cultural diversity: Caregiving for the Old Order Amish elder with Alzheimer's disease. Journal of Multicultural Nursing & Health, 8(3), 78-85.
• Connell, Cathleen M.; Roberts, J. Scott; McLaughlin, Sara J. (2007). Public opinion about Alzheimer disease among Blacks, Hispanics and Whites: Results from a national survey. Alzheimer Disease & Associated Disorders, 21(3), 232-240.
• Connell, Cathleen M., Akinleye, Dapo. (2009). Racial Differences in Knowledge and Beliefs About Alzheirner Disease. Alzheimer Disease and Associated Disorders, 23(2), 110-116.
• Depp, Colin; Sorocco, Kristen; Kasl-Godley, Julia; Thompson, Larry; Rabinowitz, Yaron; Gallagher-Thompson, Dolores. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry 13(9): 787-794.
• Dilworth-Anderson, P., & Gibson, B. E. (2002). The cultural influence of values, norms, meanings, and perceptions in understanding dementia in ethnic minorities. Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S56-S63.
• Dilworth-Anderson, Peggye; Brummett, Beverly H.; Goodwin, Paula; Williams, Sharon Wallace; Williams, Redford B.; Siegler, Ilene C. (2005). Effect of race on cultural justifications for caregiving. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 60B(5), S257-S262.
• Dilworth-Anderson, Peggye; Hendrie, Hugh C.; Manly, Jennifer J.; Khachaturian, Ara S.; Fazio, Sam. (2008). Diagnosis and assessment of Alzheimer's disease in diverse populations. Alzheimer's & Dementia, 4(4), 305-309.
• Fritsch, Thomas; Adams, Kathryn Betts; Redd, Darlyne; Sias, Tony; Herrup, Karl. (2006). Use of live theater to increase minority participation in Alzheimer disease research. Alzheimer Disease and Associated Disorders, 20(2), 105-11.
• Gallagher-Thompson, D., Haynie, D., Takagi, K., Valverde, I., & Thompson, L. (2000). Impact of an Alzheimer's disease education program: Focus on Hispanic families. Gerontology & Geriatrics Education, 20(3), 25-40.
• Hashmi, Mahnaz. (2009). Dementia: an anthropological perspective. International Journal of Geriatric Psychiatry, 24(2), 207-212.
• Henderson, J. N., & Henderson, L. C. (2002). Cultural construction of disease: A "supernormal" construct of dementia in an American Indian tribe. Journal of Cross Cultural Gerontology, 17(3), 197-212.
• Hinton, Ladson; Franz, Carol E.; Yeo, Gwen; Levkoff, Sue E. (2005). Conceptions of dementia in a multiethnic sample of family caregivers. Journal of the American Geriatrics Society, 53(8), 1405-1410.
• Hinton, W. L., Guo, Z., Hillygus, J., & Levkoff, S. (2000). Working with culture: A qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research. Journal of Cross Cultural Gerontology, 15(2), 119-137.
• Hinton, W. L., & Levkoff, S. (1999). Constructing Alzheimer's: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine and Psychiatry, 23(4), 453-475.
• Jett, Kathleen F. (2006). Mind-loss in the African American community: dementia as a normal part of aging. Journal of Aging Studies 20(1): 1-10.
• Jones, Randi S.; Chow, Tiffany W.; Gatz, Margaret. (2006). Asian Americans and Alzheimer's disease: assimiliation, culture and beliefs. Journal of Aging Studies 20(1): 11-25.
• Lanting, Shawnda; Crossley, Margaret; Morgan, Debra; Cammer, Allison. (2011). Aboriginal experiences of aging and dementia in a context of sociocultural change: Qualitative analysis of key informant group interviews with aboriginal seniors. Journal of Cross-Cultural Gerontology , 26(1), 103-117.
• Lee, Sang E., Diwan, Sadhna. (2010). What do Korean American immigrants know about Alzheimer's disease (AD)? The impact of acculturation and exposure to the disease on AD knowledge. International Journal of Geriatric Psychiatry, 25(1), 66-73.
• Leibing, A. (2002). Flexible hips? On Alzheimer's disease and aging in Brazil. Cultural Gerontology, 17(3), 213-232.
• Liu, Dandan; Hinton, Ladson; Tran, Cindy; Hinton, Devon; Barker, Judith C. (2008). Reexamining the relationships among dementia, stigma, and aging in immigrant Chinese and Vietnamese family caregivers. Journal of Cross-Cultural Gerontology, 23(3), 283-299.
• Low, Lee-Fay; Anstey, Kaarin Jane; Lackersteen, Steven Malcolm; Camit, Michael; Harrison, Fleur; Draper, Brian; Brodaty, Henry. (2011). Recognition, attitudes and causal beliefs regarding dementia in Italian, Greek and Chinese Australians. Dementia and Geriatric Cognitive Disorders, Special Issue: Dementia: The Asia-Pacific Perspectives, 30(6), 499-508.
• Mackenzie, Jenny. (2006). Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia, 5(2), 233-47.
• Mukadam, Naaheed; Cooper, Claudia; Livingston, Gill. (2011). A systematic review of ethnicity and pathways to care in dementia. International Journal of Geriatric Psychiatry 26(1), 12-20.
• Ortiz, F., & Fitten, L. J. (2000). Barriers to healthcare access for cognitively impaired older Hispanics. Alzheimer Disease & Associated Disorders, 14(3), 141-150.
• Potter, Guy G., Plassman, Brenda L., Burke, James R., Kabeto, Mohammed U., Langa, Kenneth M., Llewellyn, David J., Rogers, Mary A. M., Steffens, David C. (2009). Cognitive performance and informant reports in the diagnosis of cognitive impairment and dementia in African Americans and Whites. Alzheimer's & Dementia, 5(6), 445-453.
• Roberts, J. S., Connell, C. M., Cisewski, D., Hipps, Y. G., Demissie, S., & Green, R. C. (2003). Differences between African Americans and whites in their perceptions of Alzheimer disease. Alzheimer Disease & Associated Disorders, 17(1), 19-26.
• Williams, C., Tappen, R., Buscemi, C., Rivera, R., & Lezcano, J. (2001). Obtaining family consent for participation in Alzheimer's research in a Cuban-American population: Strategies to overcome the barriers. American Journal of Alzheimer's Disease and Other Dementias, 16(3), 183-187.
• Yeo, G., & Gallagher-Thompson, D. (Eds.). (1996). Ethnicity and the dementias. Philadelphia, PA: Taylor & Francis.

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Awareness and Understanding
Caregivers and Coping with Caregiving
Interventions and Outreach
Language as a Factor in Minority Research
Recruitment and Retention
Resource Access or Use