Social & behavioral research on Alzheimer's Disease and dementia in diverse populations: A bibliography

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Cultural Concept of Disease (23)

• Ayalon, Liat; Arean, Patricia; Bornfeld, Heather; Beard, Renee. (2009). Long term care staff beliefs about evidence based practices for the management of dementia and agitation. International Journal of Geriatric Psychiatry, 24(2), 118-124.
  
• Crist, J., Armer, J., & Radina, M. (2002). A study in cultural diversity: Caregiving for the Old Order Amish elder with Alzheimer's disease. Journal of Multicultural Nursing & Health, 8(3), 78-85.
  
• Connell, Cathleen M.; Roberts, J. Scott; McLaughlin, Sara J. (2007). Public opinion about Alzheimer disease among Blacks, Hispanics and Whites: Results from a national survey. Alzheimer Disease & Associated Disorders, 21(3), 232-240.
  
• Depp, Colin; Sorocco, Kristen; Kasl-Godley, Julia; Thompson, Larry; Rabinowitz, Yaron; Gallagher-Thompson, Dolores. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. American Journal of Geriatric Psychiatry 13(9): 787-794.
  
• Dilworth-Anderson, P., & Gibson, B. E. (2002). The cultural influence of values, norms, meanings, and perceptions in understanding dementia in ethnic minorities. Alzheimer Disease & Associated Disorders, 16(Suppl. 2), S56-S63.
  
• Dilworth-Anderson, Peggye; Brummett, Beverly H.; Goodwin, Paula; Williams, Sharon Wallace; Williams, Redford B.; Siegler, Ilene C. (2005). Effect of race on cultural justifications for caregiving. Journals of Gerontology: Series B: Psychological Sciences and Social Sciences, 60B(5), S257-S262.
  
• Dilworth-Anderson, Peggye; Hendrie, Hugh C.; Manly, Jennifer J.; Khachaturian, Ara S.; Fazio, Sam. (2008). Diagnosis and assessment of Alzheimer's disease in diverse populations. Alzheimer's & Dementia, 4(4), 305-309.
  
• Fritsch, Thomas; Adams, Kathryn Betts; Redd, Darlyne; Sias, Tony; Herrup, Karl. (2006). Use of live theater to increase minority participation in Alzheimer disease research. Alzheimer Disease and Associated Disorders, 20(2), 105-11.
  
• Gallagher-Thompson, D., Haynie, D., Takagi, K., Valverde, I., & Thompson, L. (2000). Impact of an Alzheimer's disease education program: Focus on Hispanic families. Gerontology & Geriatrics Education, 20(3), 25-40.
  
• Hashmi, Mahnaz. (2009). Dementia: an anthropological perspective. International Journal of Geriatric Psychiatry, 24(2), 207-212.
  
• Henderson, J. N., & Henderson, L. C. (2002). Cultural construction of disease: A "supernormal" construct of dementia in an American Indian tribe. Journal of Cross Cultural Gerontology, 17(3), 197-212.
  
• Hinton, Ladson; Franz, Carol E.; Yeo, Gwen; Levkoff, Sue E. (2005). Conceptions of dementia in a multiethnic sample of family caregivers. Journal of the American Geriatrics Society, 53(8), 1405-1410.
  
• Hinton, W. L., Guo, Z., Hillygus, J., & Levkoff, S. (2000). Working with culture: A qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research. Journal of Cross Cultural Gerontology, 15(2), 119-137.
  
• Hinton, W. L., & Levkoff, S. (1999). Constructing Alzheimer's: Narratives of lost identities, confusion and loneliness in old age. Culture, Medicine and Psychiatry, 23(4), 453-475.
  
• Jett, Kathleen F. (2006). Mind-loss in the African American community: dementia as a normal part of aging. Journal of Aging Studies 20(1): 1-10.
  
• Jones, Randi S.; Chow, Tiffany W.; Gatz, Margaret. (2006). Asian Americans and Alzheimer's disease: assimiliation, culture and beliefs. Journal of Aging Studies 20(1): 11-25.
  
• Leibing, A. (2002). Flexible hips? On Alzheimer's disease and aging in Brazil. Cultural Gerontology, 17(3), 213-232.
  
• Liu, Dandan; Hinton, Ladson; Tran, Cindy; Hinton, Devon; Barker, Judith C. (2008). Reexamining the relationships among dementia, stigma, and aging in immigrant Chinese and Vietnamese family caregivers. Journal of Cross-Cultural Gerontology, 23(3), 283-299.
  
• Mackenzie, Jenny. (2006). Stigma and dementia: East European and South Asian family carers negotiating stigma in the UK. Dementia, 5(2), 233-47.
  
• Ortiz, F., & Fitten, L. J. (2000). Barriers to healthcare access for cognitively impaired older Hispanics. Alzheimer Disease & Associated Disorders, 14(3), 141-150.
  
• Roberts, J. S., Connell, C. M., Cisewski, D., Hipps, Y. G., Demissie, S., & Green, R. C. (2003). Differences between African Americans and whites in their perceptions of Alzheimer disease. Alzheimer Disease & Associated Disorders, 17(1), 19-26.
  
• Williams, C., Tappen, R., Buscemi, C., Rivera, R., & Lezcano, J. (2001). Obtaining family consent for participation in Alzheimer's research in a Cuban-American population: Strategies to overcome the barriers. American Journal of Alzheimer's Disease and Other Dementias, 16(3), 183-187.
  
• Yeo, G., & Gallagher-Thompson, D. (Eds.). (1996). Ethnicity and the dementias. Philadelphia, PA: Taylor & Francis.

To explore other aspects of this topic, please click on the links below:

Awareness and Understanding
Caregivers and Coping with Caregiving
Interventions and Outreach
Language as a Factor in Minority Research
Recruitment and Retention
Resource Access or Use